I've posted about Sweet Tripp before, especially on Twitter. Tripp lost his fight with EB on Saturday,and his family laid him to rest today. I post about him not to bring sadness to all of you but to bring you awareness of this horrible disease. Please take a minute to visit his mom's blog EBing a Mommy and read Tripp's story. It will make your kiss your babies a little sweeter, make you hug them a little tighter and please make sure they last a little longer.
Now we lay him down to sleep,
I pray dear Lord, that Tripp you'll keep
hold him closely like his Mommy did,
And let him be play like a normal kid.
Give him wings so he can fly high,
... and make sure his halo brightens the sky.
Give him some music and he'll dance for you,
Give him a drum and he'll beat right on cue.
He's our little drummer boy so tiny and small
He's touched the lives of many and is loved by all
Play on little drummer boy.. You're beat will play on forever....
Written by Natasha Lambert Hollister on EB.Awareness Website
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